we are thankful tonight. ok is better than bad news. Elisabeth’s fluid is still not draining like the surgeon had hoped from the August surgery. HOWEVER, the fluid has not increased. So another MRI in 6 months. The fluid is slightly less on the brain than it was prior to surgery, but there is still plenty of it in there. The dr. said we will hold off on putting a shunt in for several reasons: she is progressing developmentally, her head size is in the average range for a five year old, and she is not experiencing headaches or nausea, etc.
So it’s a wait and see approach. She could need surgery next year, or when she’s 30. As long as she continues to progress developmentally and doesn’t have an increase in fluid, we will wait. Some people live to 60 years old with hydrocephalus until they need a surgery. We are holding off at this point because it she has a shunt put in, it requires a lot of maintenance, as well as replacing it several times (usually).
So what to do at this point? Wait. Somehow, that’s God’s answer frequently. And pray. If we have faith, God can do ANYTHING. Hasn’t He shown that time and again?! Pray like mad. And who knows? in 6 months, that fluid could totally drain…
Thanks for all the well-wishes, prayers, and thoughts today. You are good people. 🙂 It does our hearts good to know we are not alone in this. God is good. God is sovereign.
and as I’ve learned, His plan really is BEST…even when I think I’ve got a better one…
So glad all went well today. Will be praying for that fluid to drain.
Jane
She’s so adorable and healthy….I’m watching her run around BBP as I type this…she’s so full of life! Love that girl!
Beth